About us

Collaborating to improve public engagement practices in data and statistics

Explore our work and the community shaping it

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The Public Engagement in Data Research Initiative (PEDRI) unites different UK organisations working with data and statistics to improve how we all work with the public.

Our vision is for a world where everyone has a role in data for research and statistics, helping to shape decisions that deliver meaningful benefits to society through trust, transparency and collaboration.

PEDRI brings together communities through shared learning and collective action to transform how we all engage with data and statistics. Our mission is to foster a culture in which organisations embrace public voices across all relevant aspects of responsible, ethical and impactful data use.

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Our areas of work

Good 

practices

We create guidance for better public involvement and engagement in data research.

Championing activities that build trust

We collate and create inclusive approaches that enable the data science sector and the public to come together.

Public involvement in PEDRI

We co-produce projects and engagement tools with the public.

Learning and development

We help people working with data to improve their public involvement and engagement skills.

Our commitment to Equity, Diversity and Inclusion (EDI)

We are committed to embedding EDI across all PEDRI workstreams, ensuring that every project reflects our seven Good Practice Standards and core values of accessibility, fairness and representation. We are always looking to improve how we approach and integrate EDI and welcome feedback on our work in this area.

Discover our Good Practice Standards
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Our structure

Governing Board

Comprising leaders from PEDRI partner organisations and public and professional co-chairs, the board provides strategic leadership and oversight.

Coordinating Unit

An operational team at Health Data Research UK oversees the board, working groups and workstreams, with input from the groups below.

Steering Group

Composed of professionals from PEDRI partner organisations and public partners, the steering group oversees five workstream delivery groups.

Professional Members Group (in development)

For individuals working in public involvement and engagement with data research to share knowledge.

Public Advisory Group

Led by a public chair and co-chair, this group includes PEDRI partner organisations and advises on meaningful public involvement and engagement.

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Our partners

Our partners have experience and knowledge from working with data across the UK

ADR UK (Administrative Data Research UK) is a UK-wide partnership transforming the wealth of public sector data into research assets and policy-relevant insights.

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AMRC logo

The Association of Medical Research Charities (AMRC) is a membership organisation dedicated to supporting medical research charities.

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BHF DSC logo

The British Heart Foundation Data Science Centre works at the cutting-edge of cardiovascular data research.

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CRUK logo

Cancer Research UK is the world’s leading cancer charity dedicated to saving lives through research, influence and information.

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DARE UK logo

DARE UK (Data and Analytics Research Environments UK) aims to establish a safe and collaborative network of Trusted Research Environments.

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NHS England logo

The Department of Health and Social Care support ministers in leading the nation’s health and social care.

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ESRC logo

The Economic and Social Research Council is the UK’s largest funder of economic, social, behavioural, and human data science.

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Health and Care Research Wales logo

Health and Care Research Wales brings together partners across the NHS in Wales, local authorities, universities, research institutions, third sector, and others.

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Get involved

Join the PEDRI community

Whether you manage data or are a researcher, member of the public or policymaker, there’s a place for you. Discover how you can get involved.

Explore your options

“PEDRI is an important step in strengthening ADR UK’s commitment to embedding and sharing best practice in public engagement across the field of data research.”

Dr Emma Gordon
Director of ADR UK (Administrative Data Research UK) and ADR England

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Meet the coordinating team

PEDRI is coordinated by Health Data Research UK

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Samaira Khan

Partnerships and Operational Lead
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Doreen Tembo

Strategic Lead
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Amy Hodgkinson 

Learning and Development Lead
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Anna Woolman

Community Engagement and Knowledge Sharing Lead
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Katie Porter

Project Coordinator
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Maham Zaman

Research Officer | Young voices in cancer data research
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Meet the Public Advisory Group

Our Public Partners are involved in all PEDRI work areas

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Jan Speechley

Group Co-Chair and Public Partner
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Jackie Evans

Public Partner
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Anwar Gariban

Public Partner
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Heena

Public Partner
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Meet the Governing Board

Our Governing Board provide strategic leadership and oversight

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Dr Emma Gordon

Governing Board member
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Alex Newberry

Governing Board member
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Paul Manners

Governing Board member
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Ceri Steele

Governing Board member
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Dave Chuter

Governing Board member
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Joe Cuddeford

Governing Board member
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Layla Robinson

Governing Board member
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Helen Miller-Bakewell

Governing Board member
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Robin Flaig

Governing Board member
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Cassie Smith

Governing Board Chair
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Fergus McDonald

Governing Board member
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Nicola Perrin

Governing Board member
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Governing Board meeting minutes

Transparency is important. Find out what our Governing Board has been discussing.

View the meeting minutes

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