Join us

PEDRI Forum 2026

Find out more about what to expect at this event

Date | 22 September 2026

Time | 9am – 5.30pm

Location | Wellcome Trust, Central London

Join us for a one-day national event focused on building a culture of meaningful public involvement and engagement (PIE) in data and statistics. The PEDRI Forum 2026 will bring together researchers, analysts, engagement practitioners, policymakers and public contributors. 

This event will spotlight inclusive and impactful approaches to engaging the public with data research, aligned with our Good Practice Standards. Through talks, workshops and interactive sessions, we’ll explore what good PIE practice looks like and create space for sharing experiences across the sector. 

Why attend?

The PEDRI Forum 2026 is designed with connection, collaboration and inspiration in mind. You can expect: 

  • Thought-provoking sessions with a range of speakers tackling some of the big questions in PIE 
  • Opportunities to showcase your work in dedicated spaces
  • A chance to connect with others in the data research and statistics community, including researchers, charities, research organisations, data owners and members of the public

Who should attend?

This event is open to people interested in shaping better, more inclusive approaches to engaging the public in data research and statistics.

Registration

Cost | £180

Registration is now open! You can register your spot on Eventbrite.

Registration includes lunch and refreshments throughout the day. 

PEDRI is hosted by Health Data Research UK (HDR UK) which is a registered charity, and we will not make a profit on this event. Registration fees help us to cover costs associated with the event. 

Event programme

Please note that this is the draft programme. More details to follow, including tracked talks.

09:00 – 09:30: Registration & Networking


09.30 – 09.45: Welcome 

Speakers:

  • Dr Doreen Tembo, Head of Public Involvement (Health Data Research UK) and Strategic Lead (PEDRI)
  • Samaira Khan, Senior Partnerships Manager and Operational Lead (PEDRI)

09.45 – 10.45: Keynote & panel discussion

Setting the scene: Why culture change in data involvement and engagement matters

Keynote speaker: Benedetta Lacey, Deputy Director Strategy & Engagement National Data Library (Department for Science Innovation and Technology)

Panelists:

  • Benedetta Lacey
  • Professor Mary De Silva, Deputy Director for Data Policy (Department of Health and Social Care)
  • Dr Emma Gordon, Director (Administrative Data Research UK)
  • Caleb Meath, Innovation and Research Policy Manager (Association of British Pharmaceutical Industry)
  • Joe Cuddeford, Director (Smart Data Research UK)
  • Jan Speechley, Public Partner (PEDRI)

Chaired by: Doreen Tembo


10.45 – 11.15: Break & Poster/Exhibitor Viewing


11.15 – 12.30: Parallel sessions

Oral presentations

  • Track A: Public Engagement Across the Data Research Lifecycle
  • Track B: Public Engagement with Data Linkage and Data Governance

Workshops

  • Workshop C: Inclusion of Underserved and Underrepresented Communities in Data Research
  • Workshop D: Data, Statistics and AI Literacy for Meaningful Public Involvement

12.30– 13.30: Lunch & Poster/Exhibitor Showcase


13.30 – 14:00: Keynote

From the Margins to the Centre: Putting Underserved Communities at the Heart of Responsible AI

Keynote speaker: Dr Mhairi Aitkin, Co-founder and Director (Our AI Collective)


14.00 – 14.40: Interactive Engagement Sessions

  • The Linkmaster’s Dilemma: A Boardgame of Data, Decisions and Trust – Led by Dr Joseph Lam (University College London) and Rachel Leung
  • Reimagining engagement with LEGO® bricks – Led by Dr Piotr Teodorowski (University of Stirling)
  • Folding Boxes & Breaking Barriers: Building Community Engagement – Led by Professor Laura Gray (University of Leicester)

14.40 – 15:00: Break & Poster/Exhibitor Viewing


15:00 – 16:15: Parallel sessions

Oral presentations

  • Track C: Inclusion of Underserved and Underrepresented Communities in Data Research
  • Track D : Data, Statistics and AI Literacy for Meaningful Public Involvement

Workshops

  • Workshop A: Public Engagement Across the Data Research Lifecycle
  • Workshop B: Public Engagement with Data Linkage and Data Governance

16:15 – 16:25: Break


16:25 – 16.55: Keynote

Patient and Public Involvement and Engagement for Methodological Research: Help Is at Hand!

Speaker: Professor Laura Gray, Professor of Medical Statistics (University of Leicester)


16.55 – 17:15: Closing remarks

Speakers:

  • Professor Sir Andrew Morris, Director (Health Data Research UK)
  • Cassie Smith, Director of Legal, Trust and Ethics (Health Data Research UK)
Women with dark hair reading poster

Secure your spot!

Register for PEDRI Forum 2026

Register