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Discover a wide range of tools, guidance and information to support meaningful public involvement and engagement with data and statistics.

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Identifiability demystified

Understanding Patient Data clarify the language of identifiability, explaining what it means to say that information has been through a process of anonymisation and the likelihood of re-identification.
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Secure Data Environments explained

Understanding Patient Data explain secure data environments, their benefits and drawback, and examples of their use, as well as an animation.
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Examples of how patient data can be used to improve health and care

Understanding patient data share a range of case studies showing how patient data can be used to provide better care and improve health.
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What do people think about third parties using NHS data? (2020)

Understanding Patient Data commissioned research to find out what the public believes makes a fair health data partnership between the NHS, researchers, charities and industry.
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A guide to creating inclusive content and language

National Institute for Health Research (NIHR) provides guidance and best practice for inclusive writing.
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Public attitudes towards Trusted Research Environments (TREs) and sensitive data (2024)

DARE UK share key insights from their public dialogue around TREs and sensitive data.
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What is a Trusted Research Environment (TRE)?

Health Data Research UK provide an overview of what is a TRE within a one-page explainer. Using infographics and plain language they shared why TREs are important and how they are safeguarded.
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Equality, diversity and inclusion (EDI) toolkit for researchers

Newcastle University have created an EDI Toolkit for researchers, to support understanding about EDI issues in and around research. Resources include an accessibility guide, allyship guide, inclusive language guide and inclusive behaviours guide.
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Increasing equity, diversity and inclusion in patient and public involvement

The National Institute for Health and Care Research (NIHR) Policy Research Unit in Maternal and Neonatal Health and Care (PRU-MNHC) share key themes identified from their research project, to support researchers to engage and involve people who are currently under-represented in health research.
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