PEDRI Forum - Posters

Location: Main event space (6th floor)

Posters will be available to view throughout the event. We recommend viewing the posters during the breaks at 10:45-11:15, 12:30-13:30 and 14:40-15:00.

Posters

Co-producing genetic risk communication through immersive visualisation

Board: 1

Authors: Naomi Cornish (1), Leila Ellis, Peter Winter, Primrose Granville (2), George Nava, Claire M.A. Haworth, Giovanni Biglino, Oliver S.P. Davis.

1 University of Bristol, 2 Public partner and co-chair of the Bristol, North Somerset and South Gloucestershire Diverse Research Engagement Network

‘Understanding public perspectives on AI in health and care research’: Experience of delivering and sharing learning from an AI-focused public involvement event

Board: 2

Authors: Zoe Windscheffel(1), Alex Bevin-Nicholls(1)

1 NIHR Research Support Service

Young Voices in Cancer Data Research: Scoping a National Patient Engagement Platform for Children and Young people in Cancer Data Research

Board: 3

Authors: Dr Maham Zaman(1), Dr Doreen Tembo, Samaira Khan, Amy Hodgkinson, Dr Harriet Unsworth, Matt Howard Murray, Dr Louca May Brady

1 PEDRI

Building the social licence for ‘Rapid-Learning’: Empirical Insights on Trusted, Participatory Approaches

Board: 4

Authors: Catherine Bowden(1), Sarah Devaney, Søren Holm, Rebecca Holley, Brian Turner(2), Leila Hamrang(2)

1 University of Manchester, 2 Patient co-applicant

UnityBC (Understanding Inequity in Breast Cancer) – a new national research study

Board: 5

Authors: Toral Gathani, Bep Dhaliwal(2), Suki Sandhu(2), Julliet Lwiindi, Kudzai Heald

1 Nuffield Department of Population Health, University of Oxford, 2 Public Contributor

Engaging and Recruiting Forcibly Displaced Populations into Children and Young People’s Healthcare Research Initiatives: A Qualitative Study

Board: 6

Authors: Charlotte Burdge(1), Sasha Menon(1), Camille Evans(2), Dr Anne-Marie Burn(1), Perses Sethna(1), Dr Waheed Arian(3), Younus Akbari(3), Morsal Hamza(3), Freshta Hayatti(3), Professor Nathalie Kingston(4) Professor John Bradley(4), Elizabeth Mordey(4)

1 Department of Psychiatry, University of Cambridge, 2 New York University, 3 Arian Wellbeing, 4 NIHR BioResource for Translational Research

Getting into Patient and Public Involvement: An example from the Blood Disorders Group

Board: 7

Authors: Leila Ellis(1), Lucy J. Goudswaard, Kate L. Burley, Naomi Cornish, and the Blood Disorders PPI Group

1 University of Bristol

Data as a Story – Evaluation

Board: 8

Authors: Amie Longthorne(1)

1 Liverpool John Moores University

Closing the Loop: Building a Feedback Culture in PPIE

Board: 9

Authors: Faduma-Zahra Mohamed Gure(1)

1 PIONEER Acute Care Data Hub/Medicines in Acute & Chronic Care Driver Programme

Who and What Is Missing? Mapping Resources and Gaps for Inclusive Patient and Public Inclusion and Engagement (PPIE) Across the Research Lifecycle

Board: 10

Authors: Osowa Oghenetejiri Stephanie(1), Wen Wang, Brieuc Lehmann, Toral Gathani, Charlotte Misseldine

1 Data Science for Health Equity (DSxHE)

Community informed decisions in data use – Kent, Medway and Sussex Secure Data Environment

Board: 11

Authors: Isabel Clark(1), Michelle Gardener(2), Bill Speight(3), Katherine Verrall(4), Hollie Jago(2), Steve Smith(3), Dr Elizabeth Ford(5), Anna-Marie Bibby Jones(6,7) • Catherine Dampney(8), Louise Bowden (9), Amy Killick (10), Clare Delap(11), Lily Keck (12), Virginia Govoni (5,6,7)

1 Health Innovation Kent Surrey Sussex, 2 NHS Kent and Medway Digital and Data Involvement Group, 3 NHS Sussex Digital and Data People’s Panel, 4 Kent, Medway and Sussex Secure Data Environment Public and Patient Advisory Group, 5 University of Sussex, 6 Sussex Health and Care Research Partnership, 7 Sussex Research Engagement Network, 8 NHS South, Central and West, 9 KMS SDE, 10 NHS Sussex, 11 NHS Kent and Medway, 12 Social Enterprise Kent

Embedding Equity, Diversity, and Inclusion in Health Data Research: Co-creating EDI Guidance for the HDR UK Inflammation and Immunity Driver Programme

Board: 12

Authors: Tracy Jackson(1), Anna Grosse, Karen Mooney, Jean Balchin, Laura Gonzalez Rienda

1 University of Edinburgh

How do we achieve impactful patient and public involvement and engagement in statistical methodology research?

Board: 13

Authors: Samina Begum(1), Laura Gray, Julie Roberts, Michelle O’Reilly, Nicola Mackintosh, Beatriz Goulao, Christopher Newby, Sarah Markham, Sally Crowe, Sienna-Mae Yates, Mike Melvin, Aurora Todisco

1 University of Leicester

Public Engagement across the data lifecycle: development of a practical guide for (and with) researchers

Board: 14

Authors: Katja Loginova(1)

1 Berlin School of Public Engagement and Open Science

Public Contributor Led Co-Creation of an Accessibility Form for Inclusive Public Involvement

Board: 15

Authors: Rebecca Whitehorn(1), Kirsteen C Campbell, Sarah Chave, Rosie Hill, Mhairi Docherty, Michael Gregg

1 UK Longitudinal Linkage Collaboration

Building social infrastructure to democratise access to data

Board: 16

Authors: Kirsty O’Rourke(1)

1 Joseph Rowntree Foundation

Their Data, Their Voice: A Public Involvement Project with Young People Born Preterm

Board: 17

Authors: Annemarie Lodder(1), Stella Hassan(2), Jayden Thomas(2), Cheryl Battersby

1 Imperial College London, 2 Public Contributor

Getting started with public engagement

Board: 18

Authors: Joanne Webb(1), Deepti Kulkarni(1)

1 UK Data Service

Towards Inclusive Statistical Design: Co-developing Patient-Facing Educational Resources (digital poster)

Area: Main event space (6th floor)

Authors: Francesca Romana Cavallo(1,2), Zahra Azizi, Vanessa Rodriguez, Grace Revill, Leandra Brauninger, Ahwaz Akhtar, Brieuc Lehmann

1 Imperial College London, 2 Data Science for Health Equity

Learning lessons and rewards when engaging diverse people in health data research (digital poster)