Resources
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Discover a wide range of tools, guidance and information to support meaningful public involvement and engagement with data and statistics.
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Lived Experience Feedback Form template
A template to support gathering feedback and reflections from public contributors involved in data and statistics work, aligned with the Good Practice Standards.
Consultation report: Good Practice Standards Toolkit
A report outlining the consultation process of PEDRI’s Good Practice Standards Toolkit.
Guidance: PEDRI Good Practice Standards Toolkit
Guidance to support use of PEDRI’s Good Practice Standards Toolkit.
Toolkits Mountain
The Patient Experience Library have reviewed and collated existing public involvement toolkits. They share their findings within a report and interactive evidence map.
Report – Children’s social care and homelessness in Northern Ireland: Connecting data, changing futures
ADR (Administrative Data Research) Northern Ireland, VOYPIC (Voice of Young People in Care have co-produced a report with care-experienced young people to showcase the value of administrative data for understanding the relationship between children’s social care contact and homelessness risk in Northern Ireland.
Children’s social care and homelessness in Northern Ireland: Connecting data, changing futures
ADR (Administrative Data Research) Northern Ireland, VOYPIC (Voice of Young People in Care) have co-created an animation with care-experienced young people. Sharing their insights combined with administrative data to amplify their voices and better inform services.
International Data Access Tools Repository
A repository of useful tools supporting secure data access. It contains diverse contributions from members of the International Population Data Linkage Network (IPDLN). The repository includes interactive data discovery tools, signposting support and good practice resources.
Prioritising equity in public engagement in data research
This PEDRI (Public Engagement in Data Research) webinar introduces using Equality Impact Assessments to embed equitable, inclusive public involvement in data research.
Leading with empathy
A PEDRI (Public Engagement in Data Research) webinar exploring trauma‑informed public engagement in data research, focusing on empathy, safety and sensitive conversations.
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PEDRI member and Public Involvement Lead, Cancer Research UK
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