This guide explains transparency in the context of patient data. It is designed for researchers, data experts and public involvement and engagement professionals, offering insights into the practical implementation of transparency in data detailing what data is held and how it is managed.
The resource aims to clarify the importance of transparency and covers themes such as the definition of transparency, the content and context of information provided, and practical examples of transparency in action.
It also provides additional information such as examples of fair processing notices, audit trails, and open data standards. These features are aimed at helping data custodians and users understand and implement transparency in their work.
This is a useful resource to help ensure that your data practices are transparent, accountable, and trustworthy. Supporting PEDRI’s Good Practice Standard 4: Transparency.