This resource provides best practices for public involvement in health data research. It aims to improve the transparency, trustworthiness, and acceptability of health data research by involving the public.
It covers the ethical and practical aspects of public involvement in health data research specifically. The resource includes methods for involving the public at each stage of the research cycle and evaluating the impact of public involvement.
This is a useful resource to help researchers effectively engage and involve the public in health data research. Supporting PEDRI’s Good Practice Standard 6: Effective involvement and engagement.