This resource summarises public attitudes toward the use of patient data, based on research studies from 2010 to the present. It highlights key themes, such as support for using anonymised data for health research if there is public benefit, and concerns about industry using the data.

Understanding Patient Data commissioned research to find out what the public believes makes a fair health data partnership between the NHS, researchers, charities and industry.

A report from PEDRI outlining the insights gained from a public consultation on the draft Good Practice Standards for public engagement in the use of data for research and statistics (named Best Practice Standards at time of publication).