This resource summarises public attitudes toward the use of patient data, based on research studies from 2010 to the present. It highlights key themes, such as support for using anonymised data for health research if there is public benefit, and concerns about industry using the data.

The National Data Guardian for Health and Social Care in England provides guidance on the concept of ‘public benefit’ in the context of data sharing, informed by a formal dialogue with the public.

The Department for Science, Innovation and Technology (DSIT) share results from a survey of 2,051 UK adults and focus groups of 32 participants designed to understand their hopes, fears and priorities in the design, development and delivery of smart data schemes.