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Guidance and tools for public involvement

The Association of Medical Research Charities (AMRC) have collated a variety of useful resources relevant to public engagement in research. Including training, involvement methods, payment guidance and supporting diversity.
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What do members of the public think about patient data?

Understanding Patient Data has compiled a summary of research and resources exploring public attitudes towards health data. Topics include trust in different organisations, opinions on decision-making, opt-out and choice, and how views differ among different groups of people.
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How Do People Feel About the Use of Data?

This resource summarises public attitudes toward the use of patient data, based on research studies from 2010 to the present. It highlights key themes, such as support for using anonymised data for health research if there is public benefit, and concerns about industry using the data.
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