An online resource developed by the National Institute for Health and Care Research (NIHR) North West London Patient Safety Research Collaboration (PSRC) to help researchers navigate, improve and embrace public involvement.

This is a guide from NIHR (National Institute for Health and Care Research) Great Ormond Street Hospital Biomedical Research Centre and UCL (University College London) Great Ormond Street Institute of Child Health. It was co-produced with young people to reflect their views about when it is acceptable to link health and other routinely-collected administrative data, such as education and environmental data, for research projects.

This resource summarises public attitudes toward the use of patient data, based on research studies from 2010 to the present. It highlights key themes, such as support for using anonymised data for health research if there is public benefit, and concerns about industry using the data.