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A framework for lived experience in applications and research

DATAMIND provide a framework  for including patients and the public  in  funding applications and research. From development, design and planning through to dissemination.
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How Do People Feel About the Use of Data?

This resource summarises public attitudes toward the use of patient data, based on research studies from 2010 to the present. It highlights key themes, such as support for using anonymised data for health research if there is public benefit, and concerns about industry using the data.
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Improving transparency in the use of health data for research: Recommendations for a data use register standard

UK Health Data Research Alliance’s report provides recommendations for creating a data use register. A data use register is a public record showing how data is being used for research, who is using it and why. It helps show the value and benefits of using health data.
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