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Improving transparency in the use of health data for research: Recommendations for a data use register standard

UK Health Data Research Alliance’s report provides recommendations for creating a data use register. A data use register is a public record showing how data is being used for research, who is using it and why. It helps show the value and benefits of using health data.
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Policy hub

CLOSER offer resources to help researchers and policymakers connect and pursue shared goals.
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Examples of Public and Patient Engagement Activities

This resource provides examples of effective public engagement in health data through case studies. It covers topics like public attitudes toward COVID-19 technology and using theatrical performance to engage wider audiences.
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