The Public Engagement in Data Research Initiative (PEDRI) convened an online roundtable to explore how EDI can be strengthened across public involvement and engagement (PIE) in data research and statistics. This summary report outlines the discussion on opportunities and ongoing challenges in embedding EDI within data and statistics.

Health Data Research UK commissioned this review to collate existing literature on public attitudes towards the collection and use of their health data across the UK.

This scoping review explores existing research on how the public has been involved in big data studies. It outlines different approaches to involvement and engagement, helping readers understand current practice and identify opportunities to strengthen public participation.