Understanding Patient Data has compiled a summary of research and resources exploring public attitudes towards health data. Topics include trust in different organisations, opinions on decision-making, opt-out and choice, and how views differ among different groups of people.

Understanding Patient Data commissioned research to find out what the public believes makes a fair health data partnership between the NHS, researchers, charities and industry.

The Public Engagement in Data Research Initiative (PEDRI) convened an online roundtable to explore how EDI can be strengthened across public involvement and engagement (PIE) in data research and statistics. This summary report outlines the discussion on opportunities and ongoing challenges in embedding EDI within data and statistics.