Cancer Research UK explains how patient data is used in cancer research and treatment. Learn more about how this data is used to improve cancer care.

The National Data Guardian for Health and Social Care in England provides guidance on the concept of ‘public benefit’ in the context of data sharing, informed by a formal dialogue with the public.

A report from PEDRI outlining the insights gained from a public consultation on the draft Good Practice Standards for public engagement in the use of data for research and statistics (named Best Practice Standards at time of publication).