DATAMIND and The McPin Foundation created this course to help people understand how the NHS uses and stores health data, including patient rights, how researchers use data, and the risks and benefits. It’s especially useful for those who have used NHS mental health services.

This is a guide from NIHR (National Institute for Health and Care Research) Great Ormond Street Hospital Biomedical Research Centre and UCL (University College London) Great Ormond Street Institute of Child Health. It was co-produced with young people to reflect their views about when it is acceptable to link health and other routinely-collected administrative data, such as education and environmental data, for research projects.

VoiceIn is a digital platform that makes it easier for people to get involved in health research by enabling public members to contribute to research ideas in a quick and simple way. It also supports researchers to easily upload projects and connect with diverse voices.