DATAMIND and The McPin Foundation created this course to help people understand how the NHS uses and stores health data, including patient rights, how researchers use data, and the risks and benefits. It’s especially useful for those who have used NHS mental health services.

Cancer Research UK explains how patient data is used in cancer research and treatment. Learn more about how this data is used to improve cancer care.

A set of seven Good Practice Standards developed by PEDRI to guide public engagement practices in the use of data for research and statistics.