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Good Practice Standards for Public Engagement in Data for Research and Statistics (2025)

A set of seven Good Practice Standards developed by PEDRI to guide public engagement practices in the use of data for research and statistics.
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Guide to explaining how patient data is used

This resource is designed to help healthcare professionals, researchers, and public contributors talk together and share how patient data is used in UK health services.
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Patient Data Use Case Studies

Cancer Research UK explains how patient data is used in cancer research and treatment. Learn more about how this data is used to improve cancer care.
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