Understanding Patient Data explores key moments in a person’s journey through the health system when they may be most open to learning about how data informs their care and how their data could support research.

The Department for Science, Innovation and Technology (DSIT) share results from a survey of 2,051 UK adults and focus groups of 32 participants designed to understand their hopes, fears and priorities in the design, development and delivery of smart data schemes.

The National Data Guardian for Health and Social Care in England provides guidance on the concept of ‘public benefit’ in the context of data sharing, informed by a formal dialogue with the public.