This resource provides detailed guidance on how to carry out public engagement within research including guiding principles, involvement methods and case studies.

This is a guide from NIHR (National Institute for Health and Care Research) Great Ormond Street Hospital Biomedical Research Centre and UCL (University College London) Great Ormond Street Institute of Child Health. It was co-produced with young people to reflect their views about when it is acceptable to link health and other routinely-collected administrative data, such as education and environmental data, for research projects.

UK Health Data Research Alliance’s report provides recommendations for creating a data use register. A data use register is a public record showing how data is being used for research, who is using it and why. It helps show the value and benefits of using health data.