Understanding Patient Data explores key moments in a person’s journey through the health system when they may be most open to learning about how data informs their care and how their data could support research.

The Public Engagement in Data Research Initiative (PEDRI) convened an online roundtable to explore how EDI can be strengthened across public involvement and engagement (PIE) in data research and statistics. This summary report outlines the discussion on opportunities and ongoing challenges in embedding EDI within data and statistics.

The NIHR (National Institute for Health and Care Research) Innovation Observatory provides a framework to support researchers to involve public members in evidence syntheses (a process to summarise available evidence) with short time frames.