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What do members of the public think about patient data?

Understanding Patient Data has compiled a summary of research and resources exploring public attitudes towards health data. Topics include trust in different organisations, opinions on decision-making, opt-out and choice, and how views differ among different groups of people.
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Building public trust in routine data in clinical trials

Health Data Research UK (HDR UK) have created a 2-hour, self-paced training course that delves into why public trust is important in the context of clinical trials. Learn more about how to communicate and engage participants and the public on this topic on the HDR UK Futures platform.
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Rapid involvement of patients and the public in evidence synthesis (RIPPLES)

The NIHR (National Institute for Health and Care Research) Innovation Observatory provides a framework to support researchers to involve public members in evidence syntheses (a process to summarise available evidence) with short time frames.
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