This resource provides guidance on how to use accessible and simple language when talking about data to enhance communication with patients and the public.

UK Health Data Research Alliance’s report provides recommendations for creating a data use register. A data use register is a public record showing how data is being used for research, who is using it and why. It helps show the value and benefits of using health data.

The Public Engagement in Data Research Initiative (PEDRI) convened an online roundtable to explore how EDI can be strengthened across public involvement and engagement (PIE) in data research and statistics. This summary report outlines the discussion on opportunities and ongoing challenges in embedding EDI within data and statistics.