Health Data Research UK commissioned this review to collate existing literature on public attitudes towards the collection and use of their health data across the UK.

This resource provides useful tips and practical guidance on how researchers can work collaboratively with people with lived experience to shape research projects through shared decision making and equal power.

ADR (Administrative Data Research) Northern Ireland, VOYPIC (Voice of Young People in Care) have co-created an animation with care-experienced young people. Sharing their insights combined with administrative data to amplify their voices and better inform services.