DATAMIND provide a framework  for including patients and the public  in  funding applications and research. From development, design and planning through to dissemination.

UK Health Data Research Alliance’s report provides recommendations for creating a data use register. A data use register is a public record showing how data is being used for research, who is using it and why. It helps show the value and benefits of using health data.

Understanding Patient Data has compiled a summary of research and resources exploring public attitudes towards health data. Topics include trust in different organisations, opinions on decision-making, opt-out and choice, and how views differ among different groups of people.