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Mapping patient experiences

The Patient Experience Library pulls together patient experience evidence from government bodies, health charities, patient voice organisations, academic institutions and more into evidence maps. These maps help researchers and research funders identify where the evidence base is saturated and where gaps remain.
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Improving transparency in the use of health data for research: Recommendations for a data use register standard

UK Health Data Research Alliance’s report provides recommendations for creating a data use register. A data use register is a public record showing how data is being used for research, who is using it and why. It helps show the value and benefits of using health data.
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Guidance and tools for public involvement

The Association of Medical Research Charities (AMRC) have collated a variety of useful resources relevant to public engagement in research. Including training, involvement methods, payment guidance and supporting diversity.
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