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What do members of the public think about patient data?

Understanding Patient Data has compiled a summary of research and resources exploring public attitudes towards health data. Topics include trust in different organisations, opinions on decision-making, opt-out and choice, and how views differ among different groups of people.
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Public member recruitment guide

DARE UK (Data and Analytics Research Environments UK) has created a guide outlining good practice for recruiting public members to groups and activities.
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How statistics can serve the public good (2024)

This article from the Office for Statistics Regulation (OSR) outlines how statistics can benefit society. It highlights the importance of being open, building trust and public value in the use of data.
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