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What Happens to Health Data: A Guide to Large Datasets

This resource offers both a guide and video explaining how health data is gathered, stored, and used within the NHS.
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PEDRI roundtable on Equity, Diversity and Inclusion (EDI) in data research and statistics

The Public Engagement in Data Research Initiative (PEDRI) convened an online roundtable to explore how EDI can be strengthened across public involvement and engagement (PIE) in data research and statistics. This summary report outlines the discussion on opportunities and ongoing challenges in embedding EDI within data and statistics.
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Good Practice Standards for Public Engagement in Data for Research and Statistics (2025)

A set of seven Good Practice Standards developed by PEDRI to guide public engagement practices in the use of data for research and statistics.
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