This is a guide from NIHR (National Institute for Health and Care Research) Great Ormond Street Hospital Biomedical Research Centre and UCL (University College London) Great Ormond Street Institute of Child Health. It was co-produced with young people to reflect their views about when it is acceptable to link health and other routinely-collected administrative data, such as education and environmental data, for research projects.

This animated video co-created with young people showcases the possibilities of administrative data. For example, how it can improve people’s lives, help enhance communication and improve understanding with public audiences.

Understanding Patient Data clarify the language of identifiability, explaining what it means to say that information has been through a process of anonymisation and the likelihood of re-identification.