This article outlines the Transparency Standards developed by the UK Health Data Research Alliance to help data custodians build public trust by making data access processes clear and open.

This resource summarises public attitudes toward the use of patient data, based on research studies from 2010 to the present. It highlights key themes, such as support for using anonymised data for health research if there is public benefit, and concerns about industry using the data.

NIHR (National Institute for Health and Care Research) has created a toolkit to support meaningful engagement with local communities in health and social care research.