This guide helps public involvement and engagement professionals and researchers to collaborate with the public and patients, valuing their lived experiences to co-create easy to understand information. This ensures everyone equally grasps the benefit of health data.

The Office for National Statistics (ONS) summarises public attitudes, concerns and expectations on the use of data, as well as the public’s views on their use of administrative data in producing statistics.

The Alan Turing Institute has developed a training course to support understanding in the practical and ethical value of public engagement with data science and AI.