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Improving transparency in the use of health data for research: Recommendations for a data use register standard

UK Health Data Research Alliance’s report provides recommendations for creating a data use register. A data use register is a public record showing how data is being used for research, who is using it and why. It helps show the value and benefits of using health data.
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What are the best words to use when talking about data?

This resource provides guidance on how to use accessible and simple language when talking about data to enhance communication with patients and the public.
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Voices in data: the power of public involvement in data research

This community essay shared by the British Science Association explores the challenges of effectively engaging communities with administrative data research. Providing practical advice and examples of involving people in data research to ensure it accurately captures and reports the experiences of the people behind the data.
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