Understanding Patient Data has compiled a summary of research and resources exploring public attitudes towards health data. Topics include trust in different organisations, opinions on decision-making, opt-out and choice, and how views differ among different groups of people.

This resource provides clarity on the definition of transparency and practical examples of its application in health data science to support public trust.

This article outlines the Transparency Standards developed by the UK Health Data Research Alliance to help data custodians build public trust by making data access processes clear and open.