This resource offers both a guide and video explaining how health data is gathered, stored, and used within the NHS.

This article from Administrative Data Research Centre Northern Ireland, explores how researchers and care-experienced young people worked together as equal partners to shape a data-driven research project. It aims to show what co-production looks like in practice, why it matters, and what helps or hinders success.

This article shares findings from the PIONEER Health Data Research Hub at Health Data Research UK. The team engaged 350 patients, carers, healthcare staff, and public members to explore their views on how anonymised health data is used for research and their awareness of the NHS data opt-out.