This article shares findings from the PIONEER Health Data Research Hub at Health Data Research UK. The team engaged 350 patients, carers, healthcare staff, and public members to explore their views on how anonymised health data is used for research and their awareness of the NHS data opt-out.

The Centre for Community Child Health has developed a toolkit to support the involvement of children and young people in research and service design.

A PEDRI (Public Engagement in Data Research) webinar exploring what creating a culture of public engagement means in practice to ensure that data research and statistics remains relevant, inclusive and impactful.