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Public Involvement in Research Impact Toolkit (PIRIT)

A practical planner and tracker created by Cardiff University to support the integration, impact assessment and reporting of public involvement in research.
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Good Practice Standards for Public Engagement in Data for Research and Statistics (2025)

A set of seven Good Practice Standards developed by PEDRI to guide public engagement practices in the use of data for research and statistics.
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How Do People Feel About the Use of Data?

This resource summarises public attitudes toward the use of patient data, based on research studies from 2010 to the present. It highlights key themes, such as support for using anonymised data for health research if there is public benefit, and concerns about industry using the data.
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