The National Data Guardian for Health and Social Care in England provides guidance on the concept of ‘public benefit’ in the context of data sharing, informed by a formal dialogue with the public.

A repository of useful tools supporting secure data access. It contains diverse contributions from members of the International Population Data Linkage Network (IPDLN). The repository includes interactive data discovery tools, signposting support and good practice resources.

DATAMIND provide a framework  for including patients and the public  in  funding applications and research. From development, design and planning through to dissemination.