This is a guide from NIHR (National Institute for Health and Care Research) Great Ormond Street Hospital Biomedical Research Centre and UCL (University College London) Great Ormond Street Institute of Child Health. It was co-produced with young people to reflect their views about when it is acceptable to link health and other routinely-collected administrative data, such as education and environmental data, for research projects.

These animations explain how patient data is used to improve healthcare while protecting confidentiality and privacy. This resource helps educate and reassure the public about the safe use of patient data.

National Coordinating Centre for Public Engagement (NCCPE) lay out a set of principles and suggested actions to guide public engagement professionals to embed EDI into their work.