University College London (UCL) have co-developed guidance for researchers on writing lay summaries. This was developed in collaboration with parents as part of their Kids’ Environment and Health Cohort (KEHC).

Health Data Research UK provide an overview of what is a TRE within a one-page explainer. Using infographics and plain language they shared why TREs are important and how they are safeguarded.

The National Data Guardian for Health and Social Care in England provides guidance on the concept of ‘public benefit’ in the context of data sharing, informed by a formal dialogue with the public.