Understanding Patient Data has compiled a summary of research and resources exploring public attitudes towards health data. Topics include trust in different organisations, opinions on decision-making, opt-out and choice, and how views differ among different groups of people.

A series of videos from Use my Data’s education sessions, bringing together public members and professionals to discuss a variety of data topics and projects to improve data knowledge sharing.

The National Data Guardian for Health and Social Care in England provides guidance on the concept of ‘public benefit’ in the context of data sharing, informed by a formal dialogue with the public.