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Beating cancer with data (2025)

Cancer Research UK outline what research data is, the role it plays in cancer research and the role they are taking through their research data strategy.
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Perceptions of anonymised data use and awareness of the NHS data opt-out (2021)

This article shares findings from the PIONEER Health Data Research Hub at Health Data Research UK. The team engaged 350 patients, carers, healthcare staff, and public members to explore their views on how anonymised health data is used for research and their awareness of the NHS data opt-out.
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Improving transparency in data access processes

This article outlines the Transparency Standards developed by the UK Health Data Research Alliance to help data custodians build public trust by making data access processes clear and open.
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