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Good Practice Standards for Public Engagement in Data for Research and Statistics (2025)

A set of seven Good Practice Standards developed by PEDRI to guide public engagement practices in the use of data for research and statistics.
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What are the best words to use when talking about data?

This resource provides guidance on how to use accessible and simple language when talking about data to enhance communication with patients and the public.
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A framework for lived experience in applications and research

DATAMIND provide a framework  for including patients and the public  in  funding applications and research. From development, design and planning through to dissemination.
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