This article shares findings from the PIONEER Health Data Research Hub at Health Data Research UK. The team engaged 350 patients, carers, healthcare staff, and public members to explore their views on how anonymised health data is used for research and their awareness of the NHS data opt-out.

National Co-ordinating Centre for Public Engagement (NCCPE) provides guidance and further resource on how to use evaluation to develop effective public engagement practice and to inform culture change.

Understanding patient data share a range of case studies showing how patient data can be used to provide better care and improve health.