University College London (UCL) have co-developed guidance for researchers on writing lay summaries. This was developed in collaboration with parents as part of their Kids’ Environment and Health Cohort (KEHC).
An online resource developed by the National Institute for Health and Care Research (NIHR) North West London Patient Safety Research Collaboration (PSRC) to help researchers navigate, improve and embrace public involvement.
The National Data Guardian for Health and Social Care in England provides guidance on the concept of ‘public benefit’ in the context of data sharing, informed by a formal dialogue with the public.