Understanding Patient Data commissioned research to find out what the public believes makes a fair health data partnership between the NHS, researchers, charities and industry.

DATAMIND and The McPin Foundation created this course to help people understand how the NHS uses and stores health data, including patient rights, how researchers use data, and the risks and benefits. It’s especially useful for those who have used NHS mental health services.

University College London (UCL) have co-developed guidance for researchers on writing lay summaries. This was developed in collaboration with parents as part of their Kids’ Environment and Health Cohort (KEHC).