The National Data Guardian for Health and Social Care in England provides guidance on the concept of ‘public benefit’ in the context of data sharing, informed by a formal dialogue with the public.

The NIHR (National Institute for Health and Care Research) Innovation Observatory provides a framework to support researchers to involve public members in evidence syntheses (a process to summarise available evidence) with short time frames.

A collection of resources focused on public involvement in data research, compiled by the AI for Multiple Long Term Conditions Research Support Facility (AIM RSF) at the Alan Turing Institute.