Understanding Patient Data has compiled a summary of research and resources exploring public attitudes towards health data. Topics include trust in different organisations, opinions on decision-making, opt-out and choice, and how views differ among different groups of people.

This guide helps public involvement and engagement professionals and researchers to collaborate with the public and patients, valuing their lived experiences to co-create easy to understand information. This ensures everyone equally grasps the benefit of health data.

Newcastle University have created an EDI Toolkit for researchers, to support understanding about EDI issues in and around research. Resources include an accessibility guide, allyship guide, inclusive language guide and inclusive behaviours guide.