The NIHR (National Institute for Health and Care Research) Innovation Observatory provides a framework to support researchers to involve public members in evidence syntheses (a process to summarise available evidence) with short time frames.

This resource summarises public attitudes toward the use of patient data, based on research studies from 2010 to the present. It highlights key themes, such as support for using anonymised data for health research if there is public benefit, and concerns about industry using the data.

Understanding Patient Data explores key moments in a person’s journey through the health system when they may be most open to learning about how data informs their care and how their data could support research.