Health Data Research UK commissioned this review to collate existing literature on public attitudes towards the collection and use of their health data across the UK.
UK Health Data Research Alliance’s report provides recommendations for creating a data use register. A data use register is a public record showing how data is being used for research, who is using it and why. It helps show the value and benefits of using health data.
This resource provides accessible introductory information to administrative data, including animations, a glossary and further reading to help inform the public of what administrative data is and how it can be utilised for public good.