Understanding Patient Data has compiled a summary of research and resources exploring public attitudes towards health data. Topics include trust in different organisations, opinions on decision-making, opt-out and choice, and how views differ among different groups of people.

DARE UK (Data and Analytics Research Environments UK) has created a guide outlining good practice for recruiting public members to groups and activities.

This resource provides guidance on how to use accessible and simple language when talking about data to enhance communication with patients and the public.