Health Data Research UK commissioned this review to collate existing literature on public attitudes towards the collection and use of their health data across the UK.

This guide helps public involvement and engagement professionals and researchers to collaborate with the public and patients, valuing their lived experiences to co-create easy to understand information. This ensures everyone equally grasps the benefit of health data.

ADR (Administrative Data Research) Northern Ireland, VOYPIC (Voice of Young People in Care have co-produced a report with care-experienced young people to showcase the value of administrative data for understanding the relationship between children’s social care contact and homelessness risk in Northern Ireland.