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Improving transparency of longitudinal health research

DATAMIND share a variety of accessible resources about a project aimed at improving transparency, accessibility and engagement in longitudinal health research.
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What do members of the public think about patient data?

Understanding Patient Data has compiled a summary of research and resources exploring public attitudes towards health data. Topics include trust in different organisations, opinions on decision-making, opt-out and choice, and how views differ among different groups of people.
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Learning for Involvement

This NIHR (National Institute for Health and Care Research) website provides resources and training to support public involvement in health and social care research. Learn more about how to improve research through information, advice, tools, and examples for patients, carers, the public, and researchers.
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