This resource summarises public attitudes toward the use of patient data, based on research studies from 2010 to the present. It highlights key themes, such as support for using anonymised data for health research if there is public benefit, and concerns about industry using the data.

DATAMIND and The McPin Foundation created this course to help people understand how the NHS uses and stores health data, including patient rights, how researchers use data, and the risks and benefits. It’s especially useful for those who have used NHS mental health services.

A set of seven Good Practice Standards developed by PEDRI to guide public engagement practices in the use of data for research and statistics.