UK Health Data Research Alliance’s report provides recommendations for creating a data use register. A data use register is a public record showing how data is being used for research, who is using it and why. It helps show the value and benefits of using health data.

Understanding Patient Data has compiled a summary of research and resources exploring public attitudes towards health data. Topics include trust in different organisations, opinions on decision-making, opt-out and choice, and how views differ among different groups of people.

Newcastle University have created an EDI Toolkit for researchers, to support understanding about EDI issues in and around research. Resources include an accessibility guide, allyship guide, inclusive language guide and inclusive behaviours guide.