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Exploring public attitudes to health data research across the UK (2025)

Health Data Research UK commissioned this review to collate existing literature on public attitudes towards the collection and use of their health data across the UK.
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What does my health data look like and how is it used?

A playlist of videos from Use My Data where experts speak about a variety of topics to help patients and the public understand what their data looks like, how it can be used to measure inequality, explain statistical terms used in healthcare and more.
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Learning for Involvement

This NIHR (National Institute for Health and Care Research) website provides resources and training to support public involvement in health and social care research. Learn more about how to improve research through information, advice, tools, and examples for patients, carers, the public, and researchers.
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