University College London (UCL) have co-developed guidance for researchers on writing lay summaries. This was developed in collaboration with parents as part of their Kids’ Environment and Health Cohort (KEHC).

DATAMIND provide guidance for industry partners to help them find the right kinds of data and access and use it.

The National Data Guardian for Health and Social Care in England provides guidance on the concept of ‘public benefit’ in the context of data sharing, informed by a formal dialogue with the public.