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Time: 13.30 – 14.30 GMT
How can we effectively engage and involve children and young people (CYP) in data research and statistics?
Join us for this practical, insight‑rich webinar designed to help researchers and public engagement professionals engage young people in ways that are ethical, inclusive and empowering.
This session will showcase approaches to involving CYP in data research and explore what effective involvement looks like, drawing on real examples. Through real examples and practical case studies, we will cover consent processes, trust building, and how to support young voices meaningfully in research.
Speakers will present on:
- Young Voices in Cancer Data Research: Scoping the Need for a Digital Platform: Maham Zaman will share insights from Young Voices in Cancer Data Research, a project exploring the need for a national digital platform to support public involvement and engagement in cancer data research for children and young people (aged 11–25) with lived experience of cancer. Drawing on consultations with young people, families, researchers and charities, she will highlight key challenges—including ethical considerations, trust-building, and participant recruitment—and explore how digital infrastructure could support meaningful, safe, and inclusive engagement in data-driven research.
- Minecraft and Infectious Diseases: What if young people could investigate a virus outbreak and explore the ethics of public health decision making all within the virtual world of Minecraft? A project team, including Maria Fanourgiaki, Kate Duggan and Richard Fitzpatrick, used the popular video game to bring pandemic preparedness and health data to life through hands-on workshops, combining gameplay, crocheted virus models, and conversations with scientists. Delivered in schools, festivals and community events across Scotland, the project engaged more than 1000 people. In this talk, speakers will share how the project was designed and delivered, what worked and what didn’t, and how it helped with build lasting partnerships and new opportunities to engage young people with health data.
This session is part of a series of webinars exploring how you can use the PEDRI Good Practice Standards for public engagement in data research.
If you have any questions or concerns, contact us at contact@pedri.org.uk
Speaker Information
Dr Maham Zaman
Research Officer, PEDRI
Maria Fanourgiaki
Public Engagement Officer, School of Biological Sciences, University of Edinburgh
Kate Duggan
PhD Candidate, Rambault Lab, School of Biological Sciences, University of Edinburgh
Dr Richard Fitzpatrick
Academic-Track Lecturer (Zhejiang), Edinburgh Medical School (BMTO), University of Edinburgh
Matt Howard-Murray (Chair)
Public Involvement Lead, Cancer Research UK
