Cancer Research UK outline what research data is, the role it plays in cancer research and the role they are taking through their research data strategy.

An Easy Read report from PEDRI sharing how they worked with the public to develop the Good Practice Standards for public engagement in the use of data for research and statistics.

This resource summarises public attitudes toward the use of patient data, based on research studies from 2010 to the present. It highlights key themes, such as support for using anonymised data for health research if there is public benefit, and concerns about industry using the data.