Understanding Patient Data explores key moments in a person’s journey through the health system when they may be most open to learning about how data informs their care and how their data could support research.

The Association of Medical Research Charities (AMRC) have collated a variety of useful resources relevant to public engagement in research. Including training, involvement methods, payment guidance and supporting diversity.

This resource provides useful tips and practical guidance on how researchers can work collaboratively with people with lived experience to shape research projects through shared decision making and equal power.