Understanding Patient Data has compiled a summary of research and resources exploring public attitudes towards health data. Topics include trust in different organisations, opinions on decision-making, opt-out and choice, and how views differ among different groups of people.

This article shares findings from the PIONEER Health Data Research Hub at Health Data Research UK. The team engaged 350 patients, carers, healthcare staff, and public members to explore their views on how anonymised health data is used for research and their awareness of the NHS data opt-out.

This animated video co-created with young people showcases the possibilities of administrative data. For example, how it can improve people’s lives, help enhance communication and improve understanding with public audiences.