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Pan-UK Data Governance Steering Group Data Access Transparency Standards

This resource outlines good practice for transparency in data access processes.
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Prioritising equity in public engagement in data research

This PEDRI (Public Engagement in Data Research) webinar introduces using Equality Impact Assessments to embed equitable, inclusive public involvement in data research.
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Perceptions of anonymised data use and awareness of the NHS data opt-out (2021)

This article shares findings from the PIONEER Health Data Research Hub at Health Data Research UK. The team engaged 350 patients, carers, healthcare staff, and public members to explore their views on how anonymised health data is used for research and their awareness of the NHS data opt-out.
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