The National Data Guardian for Health and Social Care in England provides guidance on the concept of ‘public benefit’ in the context of data sharing, informed by a formal dialogue with the public.

The Alan Turing Institute has developed a training course to support understanding in the practical and ethical value of public engagement with data science and AI.

The National Institute for Health and Care Research (NIHR) Policy Research Unit in Maternal and Neonatal Health and Care (PRU-MNHC) share key themes identified from their research project, to support researchers to engage and involve people who are currently under-represented in health research.