This is a guide from NIHR (National Institute for Health and Care Research) Great Ormond Street Hospital Biomedical Research Centre and UCL (University College London) Great Ormond Street Institute of Child Health. It was co-produced with young people to reflect their views about when it is acceptable to link health and other routinely-collected administrative data, such as education and environmental data, for research projects.

This toolkit from the Office for Statistics Regulation (OSR) supports statistics producers to involve and engage the public in statistic production.

Understanding Patient Data commissioned research to find out what the public believes makes a fair health data partnership between the NHS, researchers, charities and industry.