This article shares findings from the PIONEER Health Data Research Hub at Health Data Research UK. The team engaged 350 patients, carers, healthcare staff, and public members to explore their views on how anonymised health data is used for research and their awareness of the NHS data opt-out.

NIHR (National Institute for Health and Care Research) has created a toolkit to support meaningful engagement with local communities in health and social care research.

This resource provides detailed guidance on how to carry out public engagement within research including guiding principles, involvement methods and case studies.