This article shares findings from the PIONEER Health Data Research Hub at Health Data Research UK. The team engaged 350 patients, carers, healthcare staff, and public members to explore their views on how anonymised health data is used for research and their awareness of the NHS data opt-out.

This resource provides examples of effective public engagement in health data through case studies. It covers topics like public attitudes toward COVID-19 technology and using theatrical performance to engage wider audiences.

A playlist of videos from Use My Data where experts speak about a variety of topics to help patients and the public understand what their data looks like, how it can be used to measure inequality, explain statistical terms used in healthcare and more.