Understanding Patient Data commissioned research to find out what the public believes makes a fair health data partnership between the NHS, researchers, charities and industry.

Newcastle University have created an EDI Toolkit for researchers, to support understanding about EDI issues in and around research. Resources include an accessibility guide, allyship guide, inclusive language guide and inclusive behaviours guide.

This guide helps public involvement and engagement professionals and researchers to collaborate with the public and patients, valuing their lived experiences to co-create easy to understand information. This ensures everyone equally grasps the benefit of health data.