ADR (Administrative Data Research) Northern Ireland, VOYPIC (Voice of Young People in Care) have co-created an animation with care-experienced young people. Sharing their insights combined with administrative data to amplify their voices and better inform services.

This resource summarises public attitudes toward the use of patient data, based on research studies from 2010 to the present. It highlights key themes, such as support for using anonymised data for health research if there is public benefit, and concerns about industry using the data.

This guide helps public involvement and engagement professionals and researchers to collaborate with the public and patients, valuing their lived experiences to co-create easy to understand information. This ensures everyone equally grasps the benefit of health data.