This guide helps public involvement and engagement professionals and researchers to collaborate with the public and patients, valuing their lived experiences to co-create easy to understand information. This ensures everyone equally grasps the benefit of health data.

A PEDRI (Public Engagement in Data Research) webinar exploring trauma‑informed public engagement in data research, focusing on empathy, safety and sensitive conversations.

Understanding Patient Data explores key moments in a person’s journey through the health system when they may be most open to learning about how data informs their care and how their data could support research.