The Patient Experience Library pulls together patient experience evidence from government bodies, health charities, patient voice organisations, academic institutions and more into evidence maps. These maps help researchers and research funders identify where the evidence base is saturated and where gaps remain.

This is a guide from NIHR (National Institute for Health and Care Research) Great Ormond Street Hospital Biomedical Research Centre and UCL (University College London) Great Ormond Street Institute of Child Health. It was co-produced with young people to reflect their views about when it is acceptable to link health and other routinely-collected administrative data, such as education and environmental data, for research projects.

This resource provides useful tips and practical guidance on how researchers can work collaboratively with people with lived experience to shape research projects through shared decision making and equal power.