Newcastle University have created an EDI Toolkit for researchers, to support understanding about EDI issues in and around research. Resources include an accessibility guide, allyship guide, inclusive language guide and inclusive behaviours guide.

A collection of resources focused on public involvement in data research, compiled by the AI for Multiple Long Term Conditions Research Support Facility (AIM RSF) at the Alan Turing Institute.

The National Data Guardian for Health and Social Care in England provides guidance on the concept of ‘public benefit’ in the context of data sharing, informed by a formal dialogue with the public.