A PEDRI (Public Engagement in Data Research) webinar exploring what creating a culture of public engagement means in practice to ensure that data research and statistics remains relevant, inclusive and impactful.

This article outlines the Transparency Standards developed by the UK Health Data Research Alliance to help data custodians build public trust by making data access processes clear and open.

UK Health Data Research Alliance’s report provides recommendations for creating a data use register. A data use register is a public record showing how data is being used for research, who is using it and why. It helps show the value and benefits of using health data.