This article shares findings from the PIONEER Health Data Research Hub at Health Data Research UK. The team engaged 350 patients, carers, healthcare staff, and public members to explore their views on how anonymised health data is used for research and their awareness of the NHS data opt-out.

The National Centre for Population Health and Wellbeing Research provides a best practice guide to support researchers with co-production, along with three workshop reports that build on this guidance. These reports share work with young people to highlight research topics of importance.

Cancer Research UK outline what research data is, the role it plays in cancer research and the role they are taking through their research data strategy.