National Co-ordinating Centre for Public Engagement (NCCPE) provides guidance and further resource on how to use evaluation to develop effective public engagement practice and to inform culture change.

This resource summarises public attitudes toward the use of patient data, based on research studies from 2010 to the present. It highlights key themes, such as support for using anonymised data for health research if there is public benefit, and concerns about industry using the data.

Understanding Patient Data clarify the language of identifiability, explaining what it means to say that information has been through a process of anonymisation and the likelihood of re-identification.