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Improving transparency in the use of health data for research: Recommendations for a data use register standard

UK Health Data Research Alliance’s report provides recommendations for creating a data use register. A data use register is a public record showing how data is being used for research, who is using it and why. It helps show the value and benefits of using health data.
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Public Involvement in Research Impact Toolkit (PIRIT)

A practical planner and tracker created by Cardiff University to support the integration, impact assessment and reporting of public involvement in research.
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Smart Data Research UK public dialogue (2025)

This report from Smart Data Research UK explores a range of public perspectives on smart data and how it’s used in research. Smart data is information generated through everyday use of digital technologies such as mobile phones, wearable health devices, store loyalty cards and smart technology.
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