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What do members of the public think about patient data?

Understanding Patient Data has compiled a summary of research and resources exploring public attitudes towards health data. Topics include trust in different organisations, opinions on decision-making, opt-out and choice, and how views differ among different groups of people.
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Exploring public attitudes to health data research across the UK (2025)

Health Data Research UK commissioned this review to collate existing literature on public attitudes towards the collection and use of their health data across the UK.
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What is data de-identification?

Research Data Scotland (RDS) provide a simple explanation of how data is de-identified, what is meant by the term anonymisation and how this differs from pseudonymisation.
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