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Good Practice Standards for Public Engagement in Data for Research and Statistics (2025)

A set of seven Good Practice Standards developed by PEDRI to guide public engagement practices in the use of data for research and statistics.
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Co-producing data research with under-served groups

This resource provides useful tips and practical guidance on how researchers can work collaboratively with people with lived experience to shape research projects through shared decision making and equal power.
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Guide to explaining how patient data is used

This resource is designed to help healthcare professionals, researchers, and public contributors talk together and share how patient data is used in UK health services.
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