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What does transparency mean? 

This resource provides clarity on the definition of transparency and practical examples of its application in health data science to support public trust.
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Guide to explaining how patient data is used

This resource is designed to help healthcare professionals, researchers, and public contributors talk together and share how patient data is used in UK health services.
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Exploring public attitudes to health data research across the UK (2025)

Health Data Research UK commissioned this review to collate existing literature on public attitudes towards the collection and use of their health data across the UK.
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