A collection of resources focused on public involvement in data research, compiled by the AI for Multiple Long Term Conditions Research Support Facility (AIM RSF) at the Alan Turing Institute.

Understanding Patient Data has compiled a summary of research and resources exploring public attitudes towards health data. Topics include trust in different organisations, opinions on decision-making, opt-out and choice, and how views differ among different groups of people.

This resource provides clarity on the definition of transparency and practical examples of its application in health data science to support public trust.