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What do we mean by public benefit? (2022)

The National Data Guardian for Health and Social Care in England provides guidance on the concept of ‘public benefit’ in the context of data sharing, informed by a formal dialogue with the public.
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How PEDRI involved the public in improving our standards (Easy Read)

An Easy Read report from PEDRI sharing how they worked with the public to develop the Good Practice Standards for public engagement in the use of data for research and statistics.
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Beating cancer with data (2025)

Cancer Research UK outline what research data is, the role it plays in cancer research and the role they are taking through their research data strategy.
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