The Department for Science, Innovation and Technology (DSIT) share results from a survey of 2,051 UK adults and focus groups of 32 participants designed to understand their hopes, fears and priorities in the design, development and delivery of smart data schemes.

This report was created as part of a cross-Government pilot programme to demonstrate how individuals with complex needs can be better supported by the Government through linking and improving data in a safe, secure and ethical way.

This is a guide from NIHR (National Institute for Health and Care Research) Great Ormond Street Hospital Biomedical Research Centre and UCL (University College London) Great Ormond Street Institute of Child Health. It was co-produced with young people to reflect their views about when it is acceptable to link health and other routinely-collected administrative data, such as education and environmental data, for research projects.