Understanding Patient Data has compiled a summary of research and resources exploring public attitudes towards health data. Topics include trust in different organisations, opinions on decision-making, opt-out and choice, and how views differ among different groups of people.

The National Data Guardian for Health and Social Care in England provides guidance on the concept of ‘public benefit’ in the context of data sharing, informed by a formal dialogue with the public.

This article from the Office for Statistics Regulation (OSR) outlines how statistics can benefit society. It highlights the importance of being open, building trust and public value in the use of data.