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What do members of the public think about patient data?

Understanding Patient Data has compiled a summary of research and resources exploring public attitudes towards health data. Topics include trust in different organisations, opinions on decision-making, opt-out and choice, and how views differ among different groups of people.
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Examples of Public and Patient Engagement Activities

This resource provides examples of effective public engagement in health data through case studies. It covers topics like public attitudes toward COVID-19 technology and using theatrical performance to engage wider audiences.
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Improving lives by linking data: Views from groups with complex needs (2023)

This report was created as part of a cross-Government pilot programme to demonstrate how individuals with complex needs can be better supported by the Government through linking and improving data in a safe, secure and ethical way.
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