A collection of resources focused on public involvement in data research, compiled by the AI for Multiple Long Term Conditions Research Support Facility (AIM RSF) at the Alan Turing Institute.

The Patient Experience Library pulls together patient experience evidence from government bodies, health charities, patient voice organisations, academic institutions and more into evidence maps. These maps help researchers and research funders identify where the evidence base is saturated and where gaps remain.

This article outlines the Transparency Standards developed by the UK Health Data Research Alliance to help data custodians build public trust by making data access processes clear and open.