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Examples of Public and Patient Engagement Activities

This resource provides examples of effective public engagement in health data through case studies. It covers topics like public attitudes toward COVID-19 technology and using theatrical performance to engage wider audiences.
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What do people think about third parties using NHS data? (2020)

Understanding Patient Data commissioned research to find out what the public believes makes a fair health data partnership between the NHS, researchers, charities and industry.
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Perceptions of anonymised data use and awareness of the NHS data opt-out (2021)

This article shares findings from the PIONEER Health Data Research Hub at Health Data Research UK. The team engaged 350 patients, carers, healthcare staff, and public members to explore their views on how anonymised health data is used for research and their awareness of the NHS data opt-out.
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