The Public and Patient Engagement Activities webpage by Understanding Patient Data provides examples of good practice for public engagement in health data. The resource offers several case studies covering topics such as exploring public attitudes to the use of technology to manage covid-19, assessing acceptability of plans to use health data and using theatrical performance to engage more people from different backgrounds in the topic of health data.
It also provides tips and advice on public engagement in health data and links to additional resources including explainers, a glossary and further case studies.
This is a useful resource to help you understand the different ways public and patient engagement activities can be effectively implemented in the context of health data. Supporting PEDRI’s Good Practice Standard 7: Creating a culture of involvement and engagement.