Research Data Scotland (RDS) provide a simple explanation of how data is de-identified, what is meant by the term anonymisation and how this differs from pseudonymisation.

UK Health Data Research Alliance’s report provides recommendations for creating a data use register. A data use register is a public record showing how data is being used for research, who is using it and why. It helps show the value and benefits of using health data.

This resource is designed to help healthcare professionals, researchers, and public contributors talk together and share how patient data is used in UK health services.