Understanding Patient Data explores key moments in a person’s journey through the health system when they may be most open to learning about how data informs their care and how their data could support research.

This resource provides clarity on the definition of transparency and practical examples of its application in health data science to support public trust.

The National Centre for Population Health and Wellbeing Research provides a best practice guide to support researchers with co-production, along with three workshop reports that build on this guidance. These reports share work with young people to highlight research topics of importance.