This resource offers both a guide and video explaining how health data is gathered, stored, and used within the NHS.

UK Health Data Research Alliance’s report provides recommendations for creating a data use register. A data use register is a public record showing how data is being used for research, who is using it and why. It helps show the value and benefits of using health data.

A toolkit from Data Saves Lives to equip patient groups and health influencers with the information and materials they need to have a positive dialogue with their communities about health data.