Understanding Patient Data explores key moments in a person’s journey through the health system when they may be most open to learning about how data informs their care and how their data could support research.

The NIHR (National Institute for Health and Care Research) Innovation Observatory provides a framework to support researchers to involve public members in evidence syntheses (a process to summarise available evidence) with short time frames.

DATAMIND and The McPin Foundation created this course to help people understand how the NHS uses and stores health data, including patient rights, how researchers use data, and the risks and benefits. It’s especially useful for those who have used NHS mental health services.