Understanding Patient Data explores key moments in a person’s journey through the health system when they may be most open to learning about how data informs their care and how their data could support research.

This article shares findings from the PIONEER Health Data Research Hub at Health Data Research UK. The team engaged 350 patients, carers, healthcare staff, and public members to explore their views on how anonymised health data is used for research and their awareness of the NHS data opt-out.

This webinar shares insights from a public contributor who talks about the importance of clear communication and provides tips for engaging the public effectively.