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What does transparency mean? 

This resource provides clarity on the definition of transparency and practical examples of its application in health data science to support public trust.
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What Happens to Health Data: A Guide to Large Datasets

This resource offers both a guide and video explaining how health data is gathered, stored, and used within the NHS.
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Perceptions of anonymised data use and awareness of the NHS data opt-out (2021)

This article shares findings from the PIONEER Health Data Research Hub at Health Data Research UK. The team engaged 350 patients, carers, healthcare staff, and public members to explore their views on how anonymised health data is used for research and their awareness of the NHS data opt-out.
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