Understanding Patient Data explores key moments in a person’s journey through the health system when they may be most open to learning about how data informs their care and how their data could support research.

ADR (Administrative Data Research) Northern Ireland, VOYPIC (Voice of Young People in Care) have co-created an animation with care-experienced young people. Sharing their insights combined with administrative data to amplify their voices and better inform services.

The National Data Guardian for Health and Social Care in England provides guidance on the concept of ‘public benefit’ in the context of data sharing, informed by a formal dialogue with the public.