This resource summarises public attitudes toward the use of patient data, based on research studies from 2010 to the present. It highlights key themes, such as support for using anonymised data for health research if there is public benefit, and concerns about industry using the data.

Health Data Research UK commissioned this review to collate existing literature on public attitudes towards the collection and use of their health data across the UK.

Health Data Research UK (HDR UK) have created a 2-hour, self-paced training course that delves into why public trust is important in the context of clinical trials. Learn more about how to communicate and engage participants and the public on this topic on the HDR UK Futures platform.