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What do members of the public think about patient data?

Understanding Patient Data has compiled a summary of research and resources exploring public attitudes towards health data. Topics include trust in different organisations, opinions on decision-making, opt-out and choice, and how views differ among different groups of people.
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What are the best words to use when talking about data?

This resource provides guidance on how to use accessible and simple language when talking about data to enhance communication with patients and the public.
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Public Involvement in Research Impact Toolkit (PIRIT)

A practical planner and tracker created by Cardiff University to support the integration, impact assessment and reporting of public involvement in research.
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