This guide helps public involvement and engagement professionals and researchers to collaborate with the public and patients, valuing their lived experiences to co-create easy to understand information. This ensures everyone equally grasps the benefit of health data.

The Patient Experience Library pulls together patient experience evidence from government bodies, health charities, patient voice organisations, academic institutions and more into evidence maps. These maps help researchers and research funders identify where the evidence base is saturated and where gaps remain.

This resource provides examples of effective public engagement in health data through case studies. It covers topics like public attitudes toward COVID-19 technology and using theatrical performance to engage wider audiences.