The National Data Guardian for Health and Social Care in England provides guidance on the concept of ‘public benefit’ in the context of data sharing, informed by a formal dialogue with the public.

Health Data Research UK commissioned this review to collate existing literature on public attitudes towards the collection and use of their health data across the UK.

This community essay shared by the British Science Association explores the challenges of effectively engaging communities with administrative data research. Providing practical advice and examples of involving people in data research to ensure it accurately captures and reports the experiences of the people behind the data.