The National Data Guardian for Health and Social Care in England provides guidance on the concept of ‘public benefit’ in the context of data sharing, informed by a formal dialogue with the public.

The Department for Science, Innovation and Technology (DSIT) share results from a survey of 2,051 UK adults and focus groups of 32 participants designed to understand their hopes, fears and priorities in the design, development and delivery of smart data schemes.

Understanding Patient Data has compiled a summary of research and resources exploring public attitudes towards health data. Topics include trust in different organisations, opinions on decision-making, opt-out and choice, and how views differ among different groups of people.