The Department for Science, Innovation and Technology (DSIT) share results from a survey of 2,051 UK adults and focus groups of 32 participants designed to understand their hopes, fears and priorities in the design, development and delivery of smart data schemes.

This report was created as part of a cross-Government pilot programme to demonstrate how individuals with complex needs can be better supported by the Government through linking and improving data in a safe, secure and ethical way.

This article shares findings from the PIONEER Health Data Research Hub at Health Data Research UK. The team engaged 350 patients, carers, healthcare staff, and public members to explore their views on how anonymised health data is used for research and their awareness of the NHS data opt-out.