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Improving transparency in data access processes
This article outlines the Transparency Standards developed by the UK Health Data Research Alliance to help data custodians build public trust by making data access processes clear and open.
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Public attitudes towards Trusted Research Environments (TREs) and sensitive data (2024)
DARE UK share key insights from their public dialogue around TREs and sensitive data.
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What do we mean by public benefit? (2022)
The National Data Guardian for Health and Social Care in England provides guidance on the concept of ‘public benefit’ in the context of data sharing, informed by a formal dialogue with the public.
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