This community essay shared by the British Science Association explores the challenges of effectively engaging communities with administrative data research. Providing practical advice and examples of involving people in data research to ensure it accurately captures and reports the experiences of the people behind the data.

This report commissioned by the Department for Science, Innovation and Technology (DSIT) details the findings of qualitative focus groups, that engaged with members of the public to understand attitudes towards foundation models (large-scale artificial intelligence models) and their use in the public sector.

This article shares findings from the PIONEER Health Data Research Hub at Health Data Research UK. The team engaged 350 patients, carers, healthcare staff, and public members to explore their views on how anonymised health data is used for research and their awareness of the NHS data opt-out.