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What do members of the public think about patient data?

Understanding Patient Data has compiled a summary of research and resources exploring public attitudes towards health data. Topics include trust in different organisations, opinions on decision-making, opt-out and choice, and how views differ among different groups of people.
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How statistics can serve the public good (2024)

This article from the Office for Statistics Regulation (OSR) outlines how statistics can benefit society. It highlights the importance of being open, building trust and public value in the use of data.
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Public engagement in practice

This resource provides detailed guidance on how to carry out public engagement within research including guiding principles, involvement methods and case studies.
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