This resource summarises public attitudes toward the use of patient data, based on research studies from 2010 to the present. It highlights key themes, such as support for using anonymised data for health research if there is public benefit, and concerns about industry using the data.

This report was created as part of a cross-Government pilot programme to demonstrate how individuals with complex needs can be better supported by the Government through linking and improving data in a safe, secure and ethical way.

This resource provides useful tips and practical guidance on how researchers can work collaboratively with people with lived experience to shape research projects through shared decision making and equal power.