This report was created as part of a cross-Government pilot programme to demonstrate how individuals with complex needs can be better supported by the Government through linking and improving data in a safe, secure and ethical way.

This article shares findings from the PIONEER Health Data Research Hub at Health Data Research UK. The team engaged 350 patients, carers, healthcare staff, and public members to explore their views on how anonymised health data is used for research and their awareness of the NHS data opt-out.

This community essay shared by the British Science Association explores the challenges of effectively engaging communities with administrative data research. Providing practical advice and examples of involving people in data research to ensure it accurately captures and reports the experiences of the people behind the data.