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How Do People Feel About the Use of Data?

This resource summarises public attitudes toward the use of patient data, based on research studies from 2010 to the present. It highlights key themes, such as support for using anonymised data for health research if there is public benefit, and concerns about industry using the data.
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Perceptions of anonymised data use and awareness of the NHS data opt-out (2021)

This article shares findings from the PIONEER Health Data Research Hub at Health Data Research UK. The team engaged 350 patients, carers, healthcare staff, and public members to explore their views on how anonymised health data is used for research and their awareness of the NHS data opt-out.
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Getting started with administrative data

This resource provides accessible introductory information to administrative data, including animations, a glossary and further reading to help inform the public of what administrative data is and how it can be utilised for public good.
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