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What do members of the public think about patient data?

Understanding Patient Data has compiled a summary of research and resources exploring public attitudes towards health data. Topics include trust in different organisations, opinions on decision-making, opt-out and choice, and how views differ among different groups of people.
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Public attitudes to data and AI (2024)

The Department for Science, Innovation and Technology have been investigating public opinion on data and AI for several years. This report provides insight from over 5,000 people across the UK.
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Improving transparency in data access processes

This article outlines the Transparency Standards developed by the UK Health Data Research Alliance to help data custodians build public trust by making data access processes clear and open.
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