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What do members of the public think about patient data?

Understanding Patient Data has compiled a summary of research and resources exploring public attitudes towards health data. Topics include trust in different organisations, opinions on decision-making, opt-out and choice, and how views differ among different groups of people.
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Co-producing data-intensive research with an underserved group

This article from Administrative Data Research Centre Northern Ireland, explores how researchers and care-experienced young people worked together as equal partners to shape a data-driven research project. It aims to show what co-production looks like in practice, why it matters, and what helps or hinders success.
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Public attitudes towards Trusted Research Environments (TREs) and sensitive data (2024)

DARE UK share key insights from their public dialogue around TREs and sensitive data.
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