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Public involvement and engagement in big data research (2024)

This scoping review explores existing research on how the public has been involved in big data studies. It outlines different approaches to involvement and engagement, helping readers understand current practice and identify opportunities to strengthen public participation.

What is Data Analysis? An expert guide with examples (2024)

This introductory blog from DataCamp explains what data analysis is and why it is important across different sectors. It covers key processes, types of analysis, techniques and tools, making it a useful starting point for those new to data.

How statistics can serve the public good (2024)

This article from the Office for Statistics Regulation (OSR) outlines how statistics can benefit society. It highlights the importance of being open, building trust and public value in the use of data.

Finding the right moments to explain data to people

Understanding Patient Data explores key moments in a person’s journey through the health system when they may be most open to learning about how data informs their care and how their data could support research.

Presenting data: 5 tips for making your data understandable (2021)

This blog, written by a statistician at the Department for Work and Pensions, shares five practical tips to make data easier to understand and engaging, helping people tell better stories using data.

What do members of the public think about patient data?

Understanding Patient Data has compiled a summary of research and resources exploring public attitudes towards health data. Topics include trust in different organisations, opinions on decision-making, opt-out and choice, and how views differ among different groups of people.

Perceptions of anonymised data use and awareness of the NHS data opt-out (2021)

This article shares findings from the PIONEER Health Data Research Hub at Health Data Research UK. The team engaged 350 patients, carers, healthcare staff, and public members to explore their views on how anonymised health data is used for research and their awareness of the NHS data opt-out.

Stats, STAT! Animations

NEJM (New England Journal of Medicine) Evidence provides short animations that explain statistical concepts used in clinical research.

Open Data Institute (ODI) Learning

The ODI offers a range of courses to help people build their data skills and improve data literacy. Some courses are free, while others require payment. Topics include data ethics, anonymisation and data protection, storytelling with data and more.

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