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Discover a wide range of tools, guidance and information to support meaningful public involvement and engagement with data and statistics.

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Stats, STAT! Animations

NEJM (New England Journal of Medicine) Evidence provides short animations that explain statistical concepts used in clinical research.

Open Data Institute (ODI) Learning

The ODI offers a range of courses to help people build their data skills and improve data literacy. Some courses are free, while others require payment. Topics include data ethics, anonymisation and data protection, storytelling with data and more.

Voice of the Child toolkit

The Centre for Community Child Health has developed a toolkit to support the involvement of children and young people in research and service design.

Resources for public involvement with AI (Artificial Intelligence) to understand multiple long-term conditions

A collection of resources focused on public involvement in data research, compiled by the AI for Multiple Long Term Conditions Research Support Facility (AIM RSF) at the Alan Turing Institute.

Community Engagement Toolkit

NIHR (National Institute for Health and Care Research) has created a toolkit to support meaningful engagement with local communities in health and social care research.

Improving transparency in data access processes

This article outlines the Transparency Standards developed by the UK Health Data Research Alliance to help data custodians build public trust by making data access processes clear and open.

Public member recruitment guide

DARE UK (Data and Analytics Research Environments UK) has created a guide outlining good practice for recruiting public members to groups and activities.

Smart Data Research UK public dialogue (2025)

This report from Smart Data Research UK explores a range of public perspectives on smart data and how it’s used in research. Smart data is information generated through everyday use of digital technologies such as mobile phones, wearable health devices, store loyalty cards and smart technology.

Health data case study library

The Association of the British Pharmaceutical Industry (ABPI) share examples of how the pharmaceutical industry has used NHS data in medical research.

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