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CRUK Cancer Data Patient & Public Community

Overview

Area(s) of interest:

Cancer

The Cancer Data Patient & Public Community is an umbrella network of approximately 120 people affected by cancer and other members of the public who are interested in cancer data and how it is used for research. This includes peoples people who have been involved or who are currently involved in Cancer Research UK’s data PPIE work. Members of the Community are interested in supporting data-driven research projects or initiatives which are primarily about cancer or strongly linked to cancer.

Additional information

Location: UK

UK

Mode of working: Hybrid

Hybrid

Members can be recruited for  local & national activities, as well as both face to face and virtual involvement.

Research experience: Yes

Notes:

Levels of experience in data and research vary from very experienced through to newcomers.

Type of involvement:

Ad-hoc Support| Co-Production| consultations| focus group| public speaking| Reviews| steering group

Notes:

Members of the community have experience and interest in steering group, focus group, consultations, public speaking, reviews and many other types of activities.

Availability:

Expenses:

Researchers will need a budget to pay honoraria and any other related expenses.

Our comments to researchers:

Please discuss with us if you have any potential opportunities and visit our Patient and Public Involvement Toolkit

Our patient and public involvement toolkit | Cancer Research UK for resources which may help you plan your involvement opportunity.

Community Connect Researcher Guidance

Read this guidance before contacting a community about public involvement and engagement opportunities.

This guidance outlines how to approach community groups respectfully and effectively and what information to provide. It provides a checklist for researchers to go through before communication first takes place.

Community Connect Researcher Guidance