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How PEDRI involved the public in improving our standards (Easy Read)

An Easy Read report from PEDRI sharing how they worked with the public to develop the Good Practice Standards for public engagement in the use of data for research and statistics.
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Improving transparency in data access processes

This article outlines the Transparency Standards developed by the UK Health Data Research Alliance to help data custodians build public trust by making data access processes clear and open.
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Public involvement and engagement in big data research (2024)

This scoping review explores existing research on how the public has been involved in big data studies. It outlines different approaches to involvement and engagement, helping readers understand current practice and identify opportunities to strengthen public participation.
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