This scoping review explores existing research on how the public has been involved in big data studies. It outlines different approaches to involvement and engagement, helping readers understand current practice and identify opportunities to strengthen public participation.

DATAMIND provide a framework  for including patients and the public  in  funding applications and research. From development, design and planning through to dissemination.

This resource provides guidance on how to use accessible and simple language when talking about data to enhance communication with patients and the public.