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Improving transparency in the use of health data for research: Recommendations for a data use register standard

UK Health Data Research Alliance’s report provides recommendations for creating a data use register. A data use register is a public record showing how data is being used for research, who is using it and why. It helps show the value and benefits of using health data.
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Glossary

DATAMIND have created a glossary that helps make the complex language used in mental health data science understandable for everyone to support communication within this field.
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Co-producing data-intensive research with an underserved group

This article from Administrative Data Research Centre Northern Ireland, explores how researchers and care-experienced young people worked together as equal partners to shape a data-driven research project. It aims to show what co-production looks like in practice, why it matters, and what helps or hinders success.
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