This resource provides useful tips and practical guidance on how researchers can work collaboratively with people with lived experience to shape research projects through shared decision making and equal power.

Cancer Research UK outline what research data is, the role it plays in cancer research and the role they are taking through their research data strategy.

The National Data Guardian for Health and Social Care in England provides guidance on the concept of ‘public benefit’ in the context of data sharing, informed by a formal dialogue with the public.