This guide helps public involvement and engagement professionals and researchers to collaborate with the public and patients, valuing their lived experiences to co-create easy to understand information. This ensures everyone equally grasps the benefit of health data.

Understanding Patient Data commissioned research to find out what the public believes makes a fair health data partnership between the NHS, researchers, charities and industry.

This report was created as part of a cross-Government pilot programme to demonstrate how individuals with complex needs can be better supported by the Government through linking and improving data in a safe, secure and ethical way.