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What is data de-identification?
Research Data Scotland (RDS) provide a simple explanation of how data is de-identified, what is meant by the term anonymisation and how this differs from pseudonymisation.
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Public Consultation on the PEDRI Good Practice Standards
A report from PEDRI outlining the insights gained from a public consultation on the draft Good Practice Standards for public engagement in the use of data for research and statistics (named Best Practice Standards at time of publication).
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Guide to explaining how patient data is used
This resource is designed to help healthcare professionals, researchers, and public contributors talk together and share how patient data is used in UK health services.
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