This resource was created in response to requests by patients that they be clearly told what their data are being used for. It shows how patient data is used in cancer research and treatment.
It is is designed for everyone, showing how patient data can be used to improve cancer care and outcomes.
The case studies include topics such as:
- Better understanding diagnostic pathways; how patients are diagnosed, from when they first tell a doctor about their symptoms to getting a diagnosis.
- Comparing differences in cancer treatment between NHS trusts and locations.
These case studies help show how important health data is for cancer research.
This is a useful resource to help communicate with patients how their data is used to improve and save lives. Supporting PEDRI’s Good Practice Standard 4: Transparency